Top 10 List of Caregiver Resources

1 — Centers for Medicare and Medicaid Services
Forms and publications to download on enrollment, eligibility, fraud, and much else. A tool for comparing nursing homes, based on the CMS rating system.

2 — Center for Medicare Advocacy
Detailed information about what Medicare covers, how to enroll, and if necessary, how to appeal denial of claims and other abuses.

3 — National Alliance for Caregiving
A coalition of organizations with resources for caregivers and professionals. Information on research, legislation, and public policy; review books; videos; and links to other resources.

4 — Leading Age
Formerly called the American Association of Homes and Services for the Aging. An association of nonprofit nursing homes, assisted living centers, continuing care retirement communities, adult day care centers, and the like. Consumer information on senior housing.

5 — National Association of Professional Geriatric Care Managers
A search by location for geriatric care managers who meet association guidelines. Also guidance on whether this service would be beneficial under individual circumstances.

6 — National Academy of Elder Law Attorneys
Search by location for members of the association. Provides questions to ask lawyers about qualifications and areas of expertise, and a wide-ranging resource list for the elderly.

7 — Visiting Nurse Associations of America Search for home health services nationwide. Suggested questions to ask service providers. Most localities have their own nonprofit organizations of nurses and other home care workers.

8 — National Hospice and Palliative Care Organization
State-by-state advance directive forms, as well as guides on issues related to palliative care, including Medicare coverage and techniques for communicating end-of-life wishes.

9 — Alzheimer's Association
Information about the disease, links to community resources, and a twenty-four-hour help line. Local chapters all over the country, each with a website, like New York's, www.alznyc.org, which includes information on local clinical trials, support groups, and special programs for early-onset disease.

10 — AARP

A national membership organization whose site provides general information and news about health, retirement, finances, caregiving, and much more, as well as tool kits, downloadable fact sheets and checklists, chatrooms, blogs, videos, resources, and links. Site links to the AARP Public Policy Institute, with research reports, public policy analysis, and current caregiving data.
Shortened URL
0 ReflectionsRead/Add Yours

Voices on the Radio

is the creator of The New Old Age blog at The New York Times and author of A Bittersweet Season: Caring for Our Aging Parents — and Ourselves.